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Stone Man Syndrome Is A Rare Disease That Turns Muscles Into Bones
For patients with a rare genetic disorder that turns their muscles into bone, there is new hope. The disease is […] ...
‘I’m like a mannequin,’ says this rare disease patient
Also known colloquially as “Stone Man Syndrome”, FOP is a rare genetic disorder where, after birth and progressively through ...
Hope arises for these rare disease patients who have 'stone man syndrome'
With their recent enrolment in a clinical trial, they look to a future with a possible drug to help manage their condition.